Hadley And Halee Wahlen

Initial Work Email: Thanks to everyone for your prayers and support on behalf of me and my family (we have felt the love and support for sure). I forwarded the below from home, this might help anyone with questions about CF. We have an amazing support group and all things considering we are doing great and plan on beating this disease! We are very optimistic about the future for us and our girls (Primary Children's has an amazing CF staff, one of the best in the world. Advances in the disease are pretty amazing and infant screenings for the disease have only been going on for 2 years now, so it is great that they caught it early). Thanks again for being such great people to work with! J The first thing that they told us at Primary Children's was to not Google stuff about CF(outdated and inaccurate info). These are helpful websites (from CF Parent Advisory Council) for people wanting to learn more: www.cff.org www.cfinutah.org facebook: search CF in Utah Brief Explanation: Cystic Fibrosis (CF) is an inherited disease that causes thick, sticky mucus to form in the lungs, pancreas and other organs. In the lungs, this mucus blocks the airways, causing lung damage and making it hard to breathe. In the pancreas, it clogs the pathways leading to the digestive system, interfering with proper digestion. People with CF have a shorter-than-normal life expectancy. The good news is that as treatments for CF improve, the life expectancy for people with the disease is rising. Fifty years ago, children with CF often died before attending elementary school. Today many people with the disease live into their 30s, 40s and beyond (our Dr yesterday told us that there are people living into 60’s and 70’s J). Getting early treatment for CF can improve your quality of life and your lifespan. Continued prayers in our behalf are appreciated. Thanks for everything.